Joanne Heitzman is a survivor of Leiomyosarcoma (LMS), a cancer of the smooth muscle tissues, and the aunt of AAACN member Barb Pacca. The new Joanne Heitzman Medical Database was recently launched as a tool to help researchers in finding treatments and a cure for LMS.
The database will be populated with information from a Comprehensive Medical Questionnaire (also created by Barb's aunt) in hopes that researchers will be able to confidentially match the information with tissue samples from the same donor.
The National Leiomyosarcoma Foundation (NLMSF) will soon be adding information about the database to its Web site along with a link to the questionnaire and instructions. If you are interested in having a questionnaire sent to you, please contact Joni at firstname.lastname@example.org. For more information on this disease, visit www.nlmsf.org